Hey everyone! I know my blogging has been sparse lately, sorry about that. I have had a real decline in my health this summer and it’s been difficult to concentrate on activities such as writing and brainstorming blog ideas.
I’ve been extremely fatigued and tired. For 2 weeks I think I just about spent most of my time sleeping. Maybe, I was sick, I think, as illness seems to hit me harder with whatever larger illness I have. Although, sleeping 24-7 has passed I still find my health declining to a place it was at about 2-years after my first episode.
I managed to enjoy my birthday “month” and this past week hasn’t been an exception despite extreme fatigue. I had a lovely dinner with the ladies at Earls Tin Palace last Tuesday and thank goodness it was $4 Bellini night because I needed alcohol. It was great to see everyone who came even though I couldn’t be involved in the conversation as much as I wanted to be.
I’m sure no one noticed but I notice these things and hope that soon I will be able to be more chatty again and less tired. By 9:30 pm I was so so sleepy and by 10:15 pm I just had to leave and take a cab home. It was fine with my friends but I felt sick the cab ride home until I went to sleep. As I often do when I’m fatigued-out, I get flu-like symptoms that go away when I become rested. It’s something I always had but am just recognizing what it is now. I think I have days that are just bad days that I feel like I have the flu but really I’m just so utterly fatigued I feel ill.
But thanks everyone who came out I really did have a great time despite my symptoms. I was so happy to see you all there and hear all about your lives, especially those of you who are travelling to fun places and having or have had kids recently in your lives.
I was also very blessed to have a ride to a friend’s Wedding shower that Sunday via Tara. And the shower was great. A beautiful bride got to be around all her best girl friends, bridesmaids, and women relatives and she seemed to enjoy herself immensely. The weather was perfect and I felt good that day ( which hasn’t been happening so much) and everyone was so nice. The bride received many nice gifts, particularly kitchen based. I decided to go with a couple sets of dishware for the shower and the wedding, the bride picked out a beautiful light blue color for her dishware. It is the same color I would have chosen. 25-years from now everyone will know when our dishes from because we all like light blue dishes.
I can’t wait for the stagette night and only hope I feel as good for that night as night’s have been particularly tough me at times. I more worried about lasting the entire night so I think I will arrive around 5;30 pm for a couple left over jello shots and the comedian and probably take off a bit earlier then everyone else from Cook County on Whyte Ave. I am so excited to go to a country bar it has been so long and my 2-stepping is probably worse than it ever was but I might be able to figure out some of the line dancing again.
Moreover, I am finally going to see my psychiatrist tomorrow. I have to tell her all about how much worse I’ve felt this summer and get her to look into Chronic Fatigue as a definitive diagnosis for what I have. Basically, Chronic Fatigue is going to sleep and never ever waking up feeling rested. There are different degrees of Chronic fatigue and I received the definitive diagnosis definition and charts/symptoms for Canada from the M.E. Society of Edmonton. I now have to take this information, along with filled out charts/symptoms (why I think I have CF) to my doctor. I printed out a list of Doctors that deal with CF in Edmonton, but I’m hoping my psychiatrist who knows my situation best can diagnose me.
If I actually have CF I’ll tell you all about it and how my individual symptoms fit in. I don’t know that this makes treatment any easier but it does tell you that yes there is something physically wrong with me that I can tell people and use for health disability status/AISH etc. I’m positive I fit the criterion, or else I don’t know what disease I fit and it could open new possibilities I haven’t thought of. Possibility can be a great thing sometimes.
— 2 days later — I have visited my psychiatrist and presented my research. Apparently, CF is very difficult to diagnose because of all the other illnesses you have to rule out first. I feel we have ruled out plenty of illnesses but my psychiatrist sent me for some blood work and she is going to send me to a rheumatologist who specifically deals with CF and Fibermielga — 2 similar diseases. It might be a whole year before I see him but I am very excited to start the process and finally get a real diagnosis on what I have dealt with fatigue wise. I may have initially had a psychotic episode caused by depression but sometimes illnesses can result in other illness such as CF. You can get better from CF but you also cannot. I hope that the fact that I was young when the fatigue first hit me (23-years-old) means that might be possible someday or that there is some treatment being developed out there that can someday help me. Although CF has been written about since the early 1400’s the medical community has only recently begun to deal with it and try to come up with ways to help patients.